Results are coming... 3 hospital stays.... omg

Sorry it has been so long to write- there has been so much going on - you wouldn't even believe this is my life!  So Nick had his surgery - had issues during surgery and luckily he came out of it ok... Opposite of all we were told he was sent home against our wishes by the PACU nurse at Childrens hospital.  Much to our shrigrin we were on not even 2 hours before rushing Nick's non responsive little body back to Boston by ambulence with a 104 and rapidly climbing fever! While totally dehydrated- he had to get poked 7 times to get a vein while the poor thing screamed his head off.  My husband I took turns to comfort him because it takes a big toll on you as a parent. 

This was Nick getting his blood work- he didn't even cry - just a pout! he is such a strong little kid!  Since the recovery from the surgery which by the way did give him pnemonia again... once home he was healthy for about a week.  Then you guessed it - Pnemonia.  This time it was bad they admitted him right away.  Three days on more heavy meds- poor Nick ended up with night tremors and seperation anxiety all over again!

Thankfully he is on the mend again!  Tomorrow we go to Boston to see if there are any results from the cilia biopsy and or if they have any ideas as to what is causing all of these issues with constant pnemonia.  As you can see he is a pretty happy little boy!

Me and my baby!

When it rains it pours!

this is Nicks stay at the hospital at home- Kylie was so happy to visit with her brother!!  She didn't want to leave...

Sibling Love

Finally getting out of bed!

Daddy snuggles


And no sooner do we get discharged............

The story of the concussion. Mike had moved plastic turtle sandbox into the walkway to dry out the sand. I was  putting Nick to bed while Mike was outside playing with Kylie.  Mike forgot that he put the sandbox in the walkway....he was running backward as Kylie was chasing him and he tripped over turtle....and..according to Kylie.....from what she told me then the firefighters who showed up after I had to call 9-1-1. 

Mike is pretty clumsy but through all his mishaps this was probably the most scary.  I have never seen him to fade in and out of conscience as he was.  He was slurring and his eyes were rolling back in his head.  For that moment realizing something was very wrong with my husband was very disturbing.  I don't know what I would do without him and for that moment imagining my life without my rock, my best friend, my partner in life was devasting.  From Kylie's eye witness,  Mike head hit the picnic table top......bounced and then hit the picnic table bench. Mike's head broke his entire fall and for a 6'4 person that is pretty high.     Mike has have no memory of how he came into the house. He does remember a paramedic moving him to sit him up... then remembers waking up in the ambulance to some wise-ass remarks (all in good fun). He  remembers the IV and waking up as he was brought into the ER.  From there he was in and out of conscienceness as he was at the house, now with loads of drug iv's for the pain they took him for a cat scan.   Thankfully he did not have bleeding on the brain but he does have quite the head injury!  Massive concussion and being that this is probably his 10th one- the healing process is longer then hoped.  He will make a full recovery thank god! 


 We are hoping to break from the drama for awhile.  At least until my sugery scheduled for August... .. lapo or hysto.. we'll see..........